- Director: Sean Fine and Andrea Nix
One family’s courageous fight to save their only son from a rare and fatal disease, progeria. The average age of death from progeria is 13, there is no treatment and no cure. Dr. Leslie Gordon and Dr. Scott Berns are set on changing this. Their son, Sam, was diagnosed with progeria at age two and they were told to enjoy what time they had. They refused to believe this was the answer. Sam is now 16. In less than a decade, their advances have led to the discovery of the gene at fault, creating the first drug trials for treatment, and revealing the amazing discovery that progeria is linked to the aging process in all of us.